—Olivia's (bi-directional) Glenn procedure is done. The complete Fontan repair will happen between 2-1/2 and 3-1/2 years old.
—Her O2 sats average 78–85, which is great for her, but bad compared to normal people; everyone else's oxygen saturation levels in their blood hover right at 100%. She'll average 95–100 after the Fontan.
—She is still a bit blue-ish, which is normal for right now since her body is getting use to the passive blood flow from the top of her body due to the mechanics of the Glenn procedure.
—Her puffiness from the procedure is going down.
—She still has staples in, of course.
—As of about 4PM on Tuesday, we have been moved to a regular room.
—She was on a few meds to stabilize her, but she's dropped down to a mix of Morphine and Oxycodone (codeine) and Motrin for pain, and a bit of Lasix which helps wick away excessive moisture from organs.
—She hasn't given us any urine since this morning, so we put in a catheter and got a bit out.
—Other than that, she's sleeping well.
—She hasn't shown us any signs that she really recognizes us yet, but she hasn't been awake for that long at a time either, so I'm not too worried. She still probably has a massive headache, and she's very sore. When she is up, she is limited in her movements due to pain and IVs and stuff, so that has to be frustrating.
—Even though she gets a bit upset when she is awake, she calms easily.
—She has two Blake drainage bulbs for either side of her chest cavity; these pull out liquids that are running loose. So far they said our stay has a lot to do with how those keep draining. The sooner they clear up, the sooner they will send us home ... but at the moment it looks like Monday or Tuesday since they are still pretty chylous (cream colored instead of red/pink, meaning there's drainage from her lymph system that seems to be more than the blood concentration).
Time to try to feed her.
And now, for the weak of stomach, avoid scrolling down. I am posting a few post-op pictures below. Click on them to enlarge them.
3 comments:
Oh my goodness--thank you for the updates & pics. I just can't stop crying & I am so reminded of my little M&M hooked up to all their "gear" in the NICU rooms when they were born at only 4 & 5lbs. This is never fun to see your sweetie like this. Okay, I am going to cry the rest of the day. But, God is good & He made babies VERY capable of healing from all of this pain. We will continue to pray & love you over here in CA. love you & thank you--Julie
Thanks for all your concern and your sweet notes, Jules.
Josh
wow. so much to take in. i'm so proud of you for following along so closely. your love and concern for Olivia is so evident; I bet she will really feel that if she ever gets a chance to read the things you wrote about her here. praying for you all as you heal together...
steph
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