I will give an adequate update as soon as I have some decent time. Suffice it to say that Olivia may or may not be coming home this week, but that is dependent on a number of things that have rapidly changed over the past two days.
Her condition (Tetralogy of Fallot with double-outlet RV ... I could explain it, but it would take at least two whiteboards) may be more easily operable than the initial diagnosis.
She will need open heart surgery still. Several surgeries throughout the first five years of life, and maybe more later on.
She will live with the heart/oxygen/lung problem for a few months and be in need of our constant and vigorous attention until surgery can occur, at which time she will be more "normal-ish" than if she got the Fontan surgeries (previous post).
Or God can do a creative miracle. He can create in her a new heart and renew something steadfast within her. We're praying for this one.
6 comments:
Amy looks incredible! I think the strenght and grace you are carrying right now is amazing and such a gift of god.
I agree, Rach. Amy, you look gorgeous! Wow. Bless you guys. We are praying for you and baby Olivia. Thanks for the blogging updates.
We are praying for the new heart too.
Am--you are beautiful as always & Olivia could not be more precious! :) Love you all & will keep praying for God's hand to move in mighty ways. love you--Jules in Cali
Thank God. We are still praying for God's hand to come and touch little Olivia's heart. We serve such a Good King.
Love you guys,
Esther
I've sent out the word for prayer, Josh. We will hold up your arms when you haven't the strength. We are asking God for "Olivia's miracle" & for Him to create a new heart in her.
God is amazingly acomplished in the area of miracles...however He wishes to perform them!
Give Amy and the girls our love,
Mom
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